Running with Luci follows the journey of a 6-man ultramarathon team that competed in a 150-mile foot race through the Himalayan mountains in November of 2011, raising awareness for a rare incurable affliction.
Our story begins with Luci, the 5-year-old daughter of Mike Horvath. Luci lives with a rare growth hormone deficiency known as panhypopituitarism that prevents her and her family from leading a normal life. Struggling with insurance agencies, doctors, and the difficulties of maintaining a daily routine has taken a toll on the family – but their burden and perseverance grew into inspiration for Mike’s colleague George Chmiel. George took it upon himself to raise awareness for their cause while competing in marathons and competitive events. A highly motivated individual, George began competing in ultramarathons and raising money for The Magic Foundation – a Chicago based non-profit that helps families dealing with rare health conditions such as PHP, get the treatment and information they need to live.